For those of you who would like to be specific in your prayers: Here is the information we have up to this point:
Alanna has a brain tumor at the base of her skull it goes deep, almost to her brain stem. It covers her cerebellum and perhaps some places where there is spinal fluid. At it's biggest it is 4cm in diameter, the size of a tangerine. The cerebellum is the part of the brain that affects coordination and balance. The surgeon thinks she has had this tumor for years and it recently grew big enough to affect her. She at this point has no balance and will fall if she trys to stand or walk. She was experiencing massive headaches that induced vomitting. Just before we took her to the ER on Saturday March 17 she had experienced a severe headache that had lasted 12 hours. She was helicoptered to UCLA Mattel Children's hospital at midnight.
The surgery will be Friday. To give the steroids more time to reduce swelling in her brain (which has been successful so far) and so the doctor can schedule his whole A team to be present. The surgery will take 6-7 hours. He will schedule it around 9 or 9:30am.
He will take out as much of the tumor as he possibly can. If he gets to close to something or it doesn't come easily he won't force it. That's when future surgeries or radiation comes into play.
She gets one incision on the back of her head down to her spine. Very little hair will be trimmed. He removes a small circular piece of the skull and part of the C1 vertebrae to get into the brain.
The day after surgery there will be an MRI to see if all of the tumor is removed. If it is not he may do another surgery soon after.
She will probably need a blood transfusion. Because she is little and tumors are a bloody mess.
Risks are infections, spinal fluid may leak, may not get the whole tumor, and cerebellum mutism (happens only in children-they become emotionally libel, difficulty with speech, extra emotional and it usually goes away by itself over time). Risk of anything major is less than 5%.
After they remove the tumor they will take some tissue to analyze it. The analysis will take one week. They will find out what kind of tumor it is. That's when they find out if it is cancerous or not.
She may need speech therapy and rehab afterwards. He thinks she probably will need rehab since she is having so much difficulty balancing and walking.
As you can imagine at this point she is emotionally distraught, does not understand what is happening, and screams at all of the hospital staff that enters the room. She is frustrated with the many things she can not do that were so easy for her to do not so long ago. She is most at herself when she is playing with her toys. They are a welcome distraction from what is going on and that is when I see her silly sweet self still shining. I'm thankful to be at a hospital that is providing toys and grateful for the toys that many of her friends have sent her. She is also cheerful when she watches the videos her teacher sends her. She likes seeing people whom she knows and loves.
Thank you for your support and love,
Emilee & Steve
Here are some pictures if you'd like it to seem even more real:
March 17
March 18 Midnight
March 20























Not a minute goes by that you are not in our thoughts. As you know, I'm not a faithful person, but I'm sending every but of positive energy your way that I can muster. Tell Alanna we (Oliver too) love and miss her very much.
ReplyDeleteLife is so fragile and we are sooooo focused with our prayers and fasting for Alanna, the doctors and her sweet family. Sending our love. John & Lynette
ReplyDeleteAlanna is a strong and sweet girl! Our best wishes for her!! Please let me know if there’s anything we can help with. Rong, Hui, & Yangxuan
ReplyDeleteAlanna, my family and I miss you very much! I am sending you a hug! I talked to my cat about you and she looked at me with her big blue eyes and I knew she was praying with me too. I love you �� very much and can’t wait to see you soon! Much love, Sister Betz
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ReplyDeleteLove you guys.
ReplyDeleteIn our thoughts and prayers. Fasting for Alanna.
Jared and Stacy, Jacob and Helen
In my thoughts and prayers. Sweet baby, you remind me of my niece. Be strong, God is with you. From Chile. Xxoox
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